Please see The Isaac Foundations clarifying statements around yesterday’s publishing of the Boston Globe. The Isaac Foundation On a positive note, the masses responding and commenting around the article see through the PR mumble jumble and side with Jack! It’s obvious the majority continue to see Shire’s goal to be the securing of a profit … Continue reading
A blog by a local mom and NBC news
Quick update
I know a lot of you have reached out about what you can do and how to help, our team is slowly but surely getting through the numerous emails and messages that have came through. As we do this, please share Jason’s message to everyone – send emails, post on Facebook, tweet on Twitter, and … Continue reading
Profits Before Patients
Today was one of the most difficult days of my life. I had to sit in front of a CEO and the VP of Research and Development of Shire Pharmaceuticals to hear my son’s fate. I am in such awe of what occurred, I am struggling to even write, so here is a quick summary … Continue reading
Important information.
please read When viewing video please skip to 32mins and hear what Phil Vickers has to say!
New Year, Same Request
A New Year This year began with the reflection of the past year. So many fond memories of life – special visits from family & friends, my children laughing in the car, a pirate party, a trip to Florida to see Barney, dance parties in the basement to top 40 music, new beautiful home, critters … Continue reading
Merry Christmas.
The Isaac Foundation created a beautiful video for us to share. Enjoy! Miracle Video And if you haven’t already, please sign the save Jack petition and then pass along. Thanks. Sign Petition ~BELIEVE IN MIRACLES~ Blessing to all, The Fowlers
an important message from an important friend
This is Jack’s best friend Gavin, they spent the first 4 years of their lives together. Please watch.
Confronting Sorrow
Shire Pharmaceuticals has made the decision that Jack will not be granted compassionate usage of their drug. Also, they won’t consider Jack to be eligible for Phase III of the trial. A group of people met and determined my son’s fate. They opted death over life. “Please recognize that we do not make these decisions … Continue reading
Gratitude List
My Top 10 special needs gratitude list. (No particular order) 1. Doctors who check their emails on a regular basis 2. Friends and family near and far who show up on your doorstep in times of need or stay up late replying to emails or PMs 3. Typical kids who stop to say hello to … Continue reading
Here's Jack! 