With Jack not receiving chemo this week I am totally cherishing the freedom from stress. Its wonderful, its like a vacation! Today was his enzyme infusion and it was such a simple task compared to last week 4 days of chemo plus enzyme plus a handful of yukky drugs (steroids). Instead of manic mom this week I’m focusing on being a present mom , the greatest gift you can give a child. It’s fun to dance, sing, read books, build towers, do puzzles, and art with your children. So much fun!
I can feel alive once I eliminate all of the pokes, prods, throw-up pans, counter full of meds after meds after meds, collection of urine samples, labs to be ran, medical supplies consuming every area if my space, alarms and beeps to remind me to take out this drug, time to flush, time for push, time to remember something… Ah its gone this week, making room in my heart and schedule to play, to write a couple Christmas cards, make a phone call or two to friends, cook something new, read a book, chat with the neighbor, and so on. It feels good. And I remind myself that this chemo
will soon pass and good things await.
Till next week I remain alive which makes it easier to see and celebrate how far Jack has come. He continues to improve with his speech and language. He is tackling the stairs with one hand assist. And the big news…drum roll he has said
four days in a row and then preformed. Exciting stuff!