Here are a few statistics and facts to illustrate the extensiveness of the rare disease problem worldwide.
There are approximately 7,000 different types of rare diseases and disorders, with more being discovered each day.
30 million people in the United States are living with rare diseases. This equates to 1 in 10 Americans or 10% of the U.S. population
Rare disease impact more people than aids and cancer combined.
In the United States, a condition is considered “rare” it affects fewer than 200,000 persons combined in a particular rare disease group.
Approximately 50% of the people affected by rare diseases are children.
30% of children with rare disease will not live to see their 5th birthday.
95% of rare diseases have not one single FDA approved drug treatment!



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